Unfortunately, we didn’t get an offer for a liver while Nick was at the top of the list for two weeks. Last week, his liver numbers improved (dropped) bringing his MELD score down and subsequently moving him back down on the list. Apparently, his liver isn’t ready to go just yet.
Nick is getting much better and is already looking forward to his follow-up surgery to reconnect his intestine and bid the bag adieu. We are looking into other transplant centers with lower waiting lists, mainly one in New Orleans and another in Charlotte. In case you’re curious, you’re MELD (model for end-stage liver disease) ranges from 0-40. UCSF seems to be transplanting around 34 and Cleveland is around 25, but they change all the time depending on demand.
Now, we’re just hoping a transplant and new baby do not coincide too close together.
More to come on working out while traveling and avoiding the great pastry battle.
Thanks for all of the love and support!